Curator: Maya Anner
For the past thirteen years, I have been photographing myself living with Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (ME/CFS), a chronic illness for which there is no cure. Splitting my perspective between photographer and subject, the images follow the progression of my illness. From being housebound to having to move in with my parents for daily assistance, becoming completely bedridden, unable to speak, hardly able to move for seven long years, and needing a feeding tube and PICC line installed in my body after my stomach became paralyzed. In 2010 I realized that living with a severe chronic illness for which there was no cure was the exact kind of story I would be inspired to photograph if I were healthy, and that I could do so despite my condition.
